I take Avonex and suffer the skin rash from the sun, flu-like symptoms, etc. Has anyone ever just stopped the drug and found their MS to get worse?|||id say
get on the site and get support and ask lots of questions..
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More results from www.msaa.com »|||I have MS and I take Betaseron. I get injection site reactions like a bee sting from my shots (fun...). The symptoms you have sound like those associated w/ Avonex but they generally lessen over time b/c your body gets used to it. The formal word out there is take your medicine. It is a preventive which doesn't benefit you now but will prevent further brain damage from happening so you hopefully never get to the point where you have serious and irreversible damage from MS. That said (and I used to be an EMT) I stopped taking Betaseron for a while b/c I couldn't stand the shots and the pain all the time and just got back on schedule. I have done MS research. If you want to chat, drop me a line at suewpbfl@bellsouth.net. P.S. If you have fatigue, ask your dr about PROVIGIL. I take it and it, along with Ginko Biloba, have made all the difference in the world. Good luck. - Susan|||girl, im medically inclined and i say dont stop or youl suffer more!
check out the medicine books and every book will say so..
textbooks dont lie., 1 book might be at error but no all..|||MS sucks. sorry but its true. I have a friend who was almost in a wheel chair and was weak all the time. They started taking VEMMA and in less than six months they are doing very much better. Not dancing yet but that is next. I know she walks at least three miles a day now. I have also heard of several others who found relief for their MS by using this suppliment. There are many wonderful doctors and organizations helping people with MS and I applaud them! My Dr. once told me that over 90% of all ailments are caused by mineral defiecency. Hey it can't hurt to take suppliments? Worked great for me and my depression too.
www.myvemma.com/bydonn|||You need to have a serious discussion w your neuro. He/she will advise you best. If you feel his/her word isn't worth it, find a neuro you trust. You both may decide a new CRAB drug is needed.
You also need more education on the subject. Call and/or see NMSS (national Multiple Sclerosis Society) for information including drug facts and support. Also join MSWORLD,ORG for patient support. Find a local MS support group.
I wish you well and hope I have helped. MS is forever and you need to know how to find the facts - you have to empower YOU!
Peace.|||I had the opposite happen. I was on Beta-Seron and had constant flu-like symptoms, having severe tingling in my feet, and a bunch of other problems. I stopped taking it and not long after I was feeling so much better. I have been off all drugs for MS for over a year and haven't had a relapse!
But....
I am not saying that what I have done is what anyone should do, this was a choice I made for myself and discussed it with my neuro.|||I stopped taking meds about 2 years ago - I have had less flares than before. It is a personal decision though - I sometimes wonder about the risks of not taking them - my side effects were awful so my quality of life was pretty low while on them....|||I made the personal choice to take copaxone just for that reason. After quite a bit of research, I decided that I would much rather have one shot a day than one a week that would make me feel horrible. I would definately recommend that you talk to your neuro about it. I use an auto-ject with my injection, and since I really have a strong dislike for needles, it makes it easier for me. So far so good for my experience with the medication. I am hoping that with some MAJOR diet changes I will see definate improvement. :) Good luck|||my mom had ms. she has copaxone (my have spelled that wrong) but you may want to talk to your dr. about that she hsnt had any serious problems with it, and has been on it for quite somt time.. Im not sure what would happen if you just stopped.. you might see more symptoms more often thoug i dont think you will develope one of the more serious cases such as progressive1 (though im not sure which type you have) but forsure talk to your doctor, you might not have to totally take yourself off just try to find one thats right for you!
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